Parents start foundation to help families who can't afford proper therapy for
kids.
Sunday, April 20, 2003
By LINDA LISANTI The Express-Times
GREENWICH TWP. -- Matthew Ruchlin sits at the picnic table behind his home
with his teacher, Melissa Hoffman, learning new words with flash cards and
basking in her continuous praises.
The 6-year-old wears a big smile that is infectious and Hoffman can't help
but smile back.
Matthew's friends and family say he is just the happiest child -- but he
wasn't always.
Two years ago, getting Matthew to just sit down was a challenge. That's when
he was first diagnosed with autism, a brain disorder that affects a person's
ability to communicate, form relationships and respond appropriately to their
environment.
For Matthew, it affected his ability to focus. In a room, he wouldn't look at
the big picture, but at the details, and he easily became overwhelmed.
When he did focus, as when watching a video, Matthew would continue staring
at a blank screen minutes after the tape had turned off.
With the help of one-on-one therapy, he has been able to overcome his
disability.
But for autistic children who can't afford private therapy, the prognosis is
not as positive.
The Ruchlin family hopes to change this system with the Matthew Ruchlin
Foundation for Autism, which was created in August. Its mission is to support
effective treatments for individuals with autism by lending monetary assistance
to agencies who provide services to autistic persons and those who do research
in developmental disabilities.
Matthew's father, Gary Ruchlin, said the idea for the foundation came to him
while on a business trip in Los Angeles with a close family friend.
While golfing, his friend asked how Matthew was doing and what he could do to
help. Gary Ruchlin replied that the family was lucky to have the means to get
Matthew the treatments he needed.
"What happens to the kids who can't afford it?" his friend then asked. Gary
Ruchlin thought hard about it. With that, the foundation was born.
Since the foundation began last summer, it has provided about $20,000 to
various agencies. This month, it will give $10,000 to be split among four Newark
families with autistic children.
Just because they can't afford to pay $100 an hour to a tutor for 40 hours a
week and then spend $200 to $300 on supplies each month, Mary Beth Ruchlin said
that shouldn't mean the children aren't helped.
Early intervention and intensive therapy are the only ways for autistic
children to have a chance for a normal life, she said. Without it, very few
marry, hold a job or are able to live without care. Some will never even learn
how to speak a word.
"We want to help where it's needed," Mary Beth Ruchlin said. "Each child has
different needs."
With about one in 100 children in the state of New Jersey affected by autism,
she said that's a lot of children to help. The foundation is focused on fund
raising. It is hosting a dinner dance and silent auction at 7 p.m. Saturday at
the Grand Ballroom of The Madison Hotel in Morristown, N.J.
Tickets are still available for purchase.
The Ruchlins hope the event raises at least $30,000. Half of the proceeds
will go to special education programs in the Greenwich Township School District,
the other half to the New Jersey Center for Outreach and Services for the Autism
Community, where it will be given to more families.
For Matthew, the Ruchlins' hopes have changed since he was first diagnosed.
Two years ago, his mother just hoped her son would say "mom."
Now, she is confident Matthew will be able to live independently and most
importantly, be happy. He seems to already have that covered.
"No sad," he says whenever someone frowns.
With the help of Hoffman, Matthew is preparing to enter the first grade next
year. He will attend regular classes with the help of an aide.
Hoffman said Matthew still needs to learn that he can't always do things the
way he wants and that routines sometimes do change. He wants every day to be the
same. It helps him to stay focused.
He also has a hard time understanding why other children don't follow
directions as closely as he does. If the teacher tells his class not to run in
the playground, he will tattle on other students.
It's not mean-spirited. For him, no running means just that, no exceptions,
Hoffman said.
She said these are minor issues to overcome compared to what Matthew already
has done.
"He has made so much progress," she said.
Gary Ruchlin hopes the foundation will help other autistic children to find
the same success Matthew has.
"I want all of them to be there, too." To purchase tickets for the April 26
dinner dance or to make a donation to the Matthew Ruchlin Foundation for Autism
call 908-387-1383.
Reporter Linda Lisanti can be reached at 610-258-7171 or by e-mail at
llisanti@express-times.com.
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