Robin McKie,
science editor
Sunday May 11, 2003 The Observer
It is a scandal that could affect thousands of families across
Britain. Reports published yesterday claim that brains from mentally
ill and handicapped men and women have been illegally and
systematically removed after death for the past 30 years and then
kept for medical research.
Now a helpline is to be set up for families who fear their loved
ones may have been involved. The move comes in readiness for
tomorrow's publication of a Department of Health inquiry into the
matter.
The practice of extracting brains without the consent of the
families concerned began in 1970 and ended only in 1999, the report
will announce. About 24,000 brains are still stored in hospitals and
universities in Britain, it will also reveal. Scientists study brain
tissue to try to understand the causes of illnesses such as
Alzheimer's, schizophrenia and Jakob-Creutzfeldt disease.
Last night Department of Health officials refused to confirm the
reports about the extent of the practice but said they have decided
to set up a helpline for families who fear a relative may have been
involved.
The inquiry - led by Inspector of Anatomy Jeremy Metters - was
set up by Health Secretary Alan Milburn two years ago after
persistent campaigning by Manchester widow Elaine Isaacs. Her
husband Cyril had his brain removed after his suicide in 1987. As
strict Jews, Mrs Isaacs said neither she nor her husband would ever
have agreed to any part of his body being removed as religious laws
require bodies to be buried intact.
Campaigners said they were optimistic the report would lead the
way to ensuring human organs are never again removed without the
consent of relatives. A spokeswoman for the National Committee
relating to Organ Retention (NACOR) said a great deal of hurt could
be avoided through greater openness and knowledge about organ
retention.
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