►March 3, 2004 -
Parents of Kentuckiana boy say he's part of rising incidence of autism -
www.whas11.com - "Evan
Riggle's autism is a puzzle a puzzle his parents say is being pieced together
by doctors, therapists, prayer warriors and family. His sister and brother help
with his speech...'He hasn't even spoken a word, but he has the potential to
change more lives than we ever could,' Evans father David says...Emlyn says
Evan's system couldn't handle a mercury preservative in vaccines called
thimerosal. She says once those vaccines had worn down Evans immune system, his
one-year measles, mumps and rubella or MMR shot was a knockout punch." ►March 2, 2004 -
UK autism research 'is lacking' - UK research into the
causes and treatment of autism is seriously behind that of other countries, a
report says. - BBC News - "It
says the row over a possible link with the MMR jab has over-shadowed the fact
that little is known about the behavioural disorder...And it calls for wider
research into all aspects of the condition."
►New report
calls for more research into causes of autism - National Autistic Society,
UK - ""Mapping Autism Research" is the first-ever comprehensive overview of the
UK research field. It outlines a surprising lack of research into the causes of
autism and successful interventions compared with other countries. The review
also concludes that research into how families cope and into autism support
services is extremely scant."
Comment: It
is a disgrace that so much of the cost of research and care falls so squarely on
the shoulders of parents already over-burdened by the needs of their precious
children.
►February 29, 2004 -
Research slowly helping despair give way to hope (requires registration) -
The Arizona Republic - "'Your child has autism.'...More than 10 families contact
the Phoenix-based South- west Autism Research & Resource Center every week after
hearing that devastating diagnosis...I say 'family' because autism not only
affects your child, but every member of the family. How you feel, what you do,
where you eat, how and where you sleep largely depend upon your child with
autism."
►February 27, 2004 -
Demand for research grows as autism cases soar - New York Times via
Kalamazoo Gazette via www.mlive.com - "But
what lies behind the increase in cases is sharply debated. To some, the upswing
has all the hallmarks of an epidemic and indicates that autism itself is
increasing rapidly...To others, the rise can in large part be explained by
increased public awareness of autism in recent years, changes in the way the
disorder is diagnosed and the incentive of tapping into federally mandated
services for autistic children...Neither side can prove its argument, because
the types of studies that could tease out a true increase have not been done."
►February 18, 2004 - Think
twice about disorderly children (opinion) - York Daily Record - "I am the
parent of a preschool-age autistic child, as well as a 'typical' toddler. Im
writing in the hopes that some of the residents of the county might read this
and think twice the next time they see an undisciplined child in the grocery
store, the park, or the mall."
►February 24, 2004 -U.S.
will pay for study to seek cause of autism - USA Today - "A major
U.S.-financed study designed to unearth the roots of autism will track 100,000
babies in Norway to identify biological and environmental factors that could
combine to cause autism and other developmental disorders...Researchers will
collect information on exposures to toxins, including mercury, which has been
suspected as a factor in autism, as well as diet, vaccines, babies' birth weight
and head circumference, and volumes of other data that can be analyzed to
compare children who develop autism with those who do not."
►February 18,
2004 -
Autism claims attention at schools - Educators respond to increased cases
among students - Atlanta Journal-Constitution - "Gwinnett
County Public Schools has seen an unexplained explosion in the number of
students like Danny, now an eighth-grader at Shiloh Middle School in
Snellville...In the early 1990s, fewer than 50 students with autism were
enrolled in county schools. This year, 689 are receiving services here a more
than tenfold increase in 10 years. Teachers are serving 150 more students with
autism than they did last year, which makes these students one of the
fastest-growing segments of the district's booming special education
population."
►February 18, 2004 -
Theories on autism - Capital News 9 - "This is what seems to be baffling the
medical community. It is not clear if more children have autism, or doctors
simply have a clearer understanding of what autism is."
Comment:
Without seeing the raw data, it is difficult to know what this study is
demonstrating. But unless they can show that "developmental disorders"
went down about the same amount as autism went up, this study does not prove
that changing diagnostic practices are "a major cause" for the rise in diagnosed
autism.
►February 16, 2004 - For
the Love of a Child - www.the-signal.com
- "Emily Iland said her son was not diagnosed with any condition until the age
of 13. She said they both cried every day for years because no one knew
how to help him."
►February 16, 2004 -
Autism: Looking for answers to a growing problem - Looking for answers to a
growing problem - Scripps Howard News Service via Courier & Press - "It's
one of the worst nightmares a parent can imagine - without warning, a child is
abducted from his bed in the middle of the night, never to return...Now, imagine
that instead of taking the whole child, only his mind is stolen and his body -
the hollow shell of his being - is left behind."
►February 16, 2004 -
Scientists theorize a new form of autism may be emerging - Scripps Howard
News Service via Courier & Press - "About
half of all children with autism are mentally retarded, but many autistic
children have normal or even superior intelligence. The share of autistic
children who are not mentally retarded appears to be increasing, causing some
scientists to theorize that a new form of the disorder is emerging...The
societal costs are staggering. The average child with autism will require $4
million in lifetime supervision and care."
►February 14, 2004 - His
world is worth knowing - Times Union - "Turns
out he once had wanted to be a journalist, perhaps a sportswriter, but he
couldn't do it...Because if he had to interact with people every day, something
might be said that would cause his head to flail and his mouth to clamp onto his
arm as he tried to regain control of himself...So Cohen, a 46-year-old Boston
University graduate, can't work...He has Asperger syndrome, a form of autism
that causes him to have difficulty socializing, to read more than an English
Ph.D., and to experience occasional emotional outbursts, which occur
infrequently now that he's older and on medication."
►Autism
A.L.A.R.M. - CDC, AAP et al via
www.medicalhomeinfo.org - "Autism is prevalent...1 out of 6 children are
diagnosed with a developmental disorder and/or behavioral problem...1 in 166
children are diagnosed with an autism spectrum disorder"
Comment: Note that it is the CDC and AAP that are
saying this.
►January 29, 2004 -
Coolidge v. Riegle - court of appeals decision re: autistic child who acted
aggressively against his teacher
►February 12, 2004 -
Making All Faces
Familiar for Those With Autism - HealthDayNews via
www.14wfie.com -
"University
of Washington researchers have discovered that the brains of people with autism
function differently than the brains of normal people when they see pictures of
unfamiliar people...The study of 11 adolescents and adults with autism and 10
age-matched controls also found that when people with autism see a picture of a
familiar face, their brain activity is similar to that of other people...The
researchers say these findings indicate that in people with autism, a brain
region called the fusiform gyrus that's associated with face processing has the
potential to function normally, but may need special training to do so."
►February 9, 2004 -
Special Training May Help People with Autism Recognize Faces - press release
- University of Washington via Newswise►February 9, 2004 - Coping
With Autism - Ivanhoe Newswire - "The most recent statistics show
autism affects between one and three of every 500 people. Its a lifelong
disorder that makes social interaction and every day communication tough. It
also causes aggression in many people. Now different therapies can help ease
that autistic aggression."
January 26 - February 8, 2004 (2 weeks combined
due to illness)
►February 15, 2004 -
Public health monitoring of developmental disabilities with a focus on the
autism spectrum disorders. - journal article (Am J Med Genet) -
"Developmental disabilities (DDs) are conditions characterized by physical,
cognitive, psychological, sensory, adaptive, and/or communication impairments
manifested during development. Approximately 17% of individuals in the United
States 18 years and younger have a DD, and for most children the cause of their
condition is unknown."
Comment: Almost 20% of our children are thought to
be developmentally disabled. Isn't this kinda, sorta a crisis?
►February 6, 2004 - Coeliac
Disease - the Tip of the Iceberg -
University of
Bristol via www.newswise.com - "The
full extent of a hidden condition which goes largely undetected among British
children - and unnoticed until adulthood - has been identified by doctors in
Bristol...Their research suggests that until now the scale of coeliac disease
among UK children has been under-estimated. Currently, fewer than one in 2,500
children is treated for the disease, but the study of children in Bristol has
shown that it probably affects one child in 100, although most have no overt
symptoms."
►February 3, 2004 - Disorder
still largely a mystery -
www.rockymountainnews.com - "They
are children locked in a world of their own, victims of a mysterious brain
disorder that steals their ability to relate to other people and their
environment...And there are more of them all the time. The Autism Society of
America reports that the incidence of autism is increasing 10 percent to 17
percent annually....'The numbers are really extraordinary,' Thomas Insel,
director of the National Institute of Mental Health, told a conference on autism
convened in November by federal health agencies."
►February
6, 2004 -
Fragile X/Autism Help - Ivanhoe - "Autism is a neurological disorder that
affects about one in every 500 people. Another disorder, Fragile X syndrome,
also called Martin-Bell syndrome, is less common, but has similar traits and can
be just as difficult to live with. It affects females less severely, but for
most males, social anxiety, behavior, learning and development are all impaired.
Now one medication offers hope to these patients."
►January 26, 2004 - More
and More Autism Cases, Yet Causes Are Much Debated (requires registration or
subscription) - The New York Times - "Over the years, a host of other
environmental factors have also been nominated as culprits, including a variety
of infections, like German measles in pregnant mothers; the sedative drug
thalidomide; the drug Pitocin, used to induce labor; synthetic compounds like
plastics and PCB's; and food additives."
Lillian
wanted to tell me a little about life with her beautiful boys, both of whom are
autistic...She also wanted very kindly and gently to talk a little about the
rest of us, about the judgments we make and the little things we do that can be
very painful to parents of special needs children."
►January 24, 2004 - Autism
seems to be increasing worldwide, if not in London - letter - F. Edward
Yazbak, paediatrician - journal article (BMJ) - "Taylor's raw data have
remained inaccessible since 1999, whenhe first denied any connection
between autism and measles, mumps,and rubella vaccination, in a
study that neither had a populationbased cohort design nor
sufficient statistical power to detectan association."
►January 21, 2004 - Autism reaching 'epidemic' levels
- www.tcpalm.com - "It's
one of the worst nightmares a parent can imagine - without warning, a child is
abducted from his bed in the middle of the night, never to return...Now, imagine
that instead of taking the whole child, only his mind is stolen and his body -
the hollow shell of his being - is left behind."
►January 20, 2004 - A
World Apart From Autism - Asperger syndrome challenges experts to
distinguish its symptoms and treatments - Newsday - "When Eric Schissel was a
boy, ZIP codes fascinated him. And he had magnificent obsessions with
mathematics, dictionaries, penguins and foreign languages. He was master of an
amazing party trick: Pick any date in history, and he could tell you what day it
landed on. But Eric Schissel wasn't invited to any parties."
►January 18, 2004 - Children
with disability at risk of victimisation - Sunday Herald, UK - "Children who suffer from conditions such as autism or attention deficit hyperactivity
disorder (ADHD) could be wrongly caught up in the criminal justice system as a
result of the Scottish Executives Anti-social Behaviour Bill...According to the
proposed law, anti-social behaviour is anything that is likely to result in the
alarm or distress of a third party, but the campaigners warn that certain
repetitive or unusual behaviour by children with autism or ADHD could be
misinterpreted to mean exactly this."
►January
18, 2004 -
Autism rise may be a myth (requires subscription) - The Sunday Times, UK -
"A leading medical team claims to have solved the mystery of Britains fourfold
rise in cases of childhood autism and it has nothing to do with the MMR ..."
►January 14, 2004 - Tall
in the saddle - Disability is no barrier for determined young cowboy -
Star-Telegram
►January 14, 2004 - Autism
fears over disorder bill - A leading charity has claimed that a new law on
anti-social behaviour could be used against autistic children - BBC
►January 12, 2004 -
Science getting to roots of autism - USA Today - "High on the list of
priorities is finding the genes associated with autism. At the meeting, the
private autism research alliance and the public National Institutes of Health
announced a partnership to do just that. The NIH is contributing $2.5 million,
and the alliance is contributing $2 million to start the project, which will
help to link the work of 170 researchers around the world, Shih says."
C
omment
from
Professor Jon Kabara,
BS, MS, PhD (link to
references): "A seductive notion, but not to the point. In
research if you don't ask the right question you'll never get the right answer.
If genetics were most important then why has autism gone from
one in thousands to one in hundreds, maybe
even one in less than a hundred? I don't think that the gene pool has changed that
drastically to account for this pandemic rise in diagnoses. If
medicine/government would look in the mirror, it might find that over and
inappropriate vaccine/drug use could be the main problem. Parents with autistic
children have enough to deal with without the burden of genetic guilt."
►January 11, 2004 -
Autism's
full spectrum - USA Today - "When researchers study autism today,
they are studying a more broadly defined spectrum of disorders than was once
recognized...People with autism spectrum disorders can be severely impaired
mute, retarded, caught up in a world of obsessive and seemingly meaningless
behaviors or they can be so intelligent and verbal that they appear merely
quirky to an untrained observer."
►Definitions of various PDDs
(Pervasive Developmental Disorders) (scroll down the left side of the page) -
PDD Parent Support
►January 11, 2004 - Some
overworked parents get a break - An autism support group program offers care
for special-needs children to give mom and dad some time off. - Times Leader
Comment:
Here we go again. Minimizing the very real pain and suffering of those
most acutely affected by autism by associating autism with its most benign (and
sometimes even beneficial) form. For more on this, go to
Scandals:
Adding Insult to Injustice to Injury Redux.
►January 7, 2004 - National
Summit Charts a Path Through a Scientific, Clinical Wilderness (require
subscription) - journal article (JAMA) -
"Autism
advocates say that for decades, allof science has turned away from
the mysterious brain disorder,diagnosed now more than ever. Jon
Shestack, father of a sonwith autism and vice president of the
advocacy group Cure AutismNow, said he felt like 'someone snuck into
my home and stolemy one-and-a-half year old's mind, leaving his
bewildered bodybehind.' If 1 in 250 children were actually being
abducted ratherthan diagnosed with autism, "it would be a national
emergency,"he said...Budget figures bear out such criticism.
►January 7, 2004 - If
only he could call Dad - I have only one simple wish for
2004 - to hear my autistic son say 'Daddy' for the first time. It will be music
to my ears - The Straits Times, Asia
►January 7, 2004 - Whitbread
prize honours children's book - Reuters via
www.abc.net.au - "Judges lavished praise on Haddon's winning novel, a murder
mystery whose 15-year-old detective and narrator is a boy with Asperger's
Syndrome, a form of autism."
►January 8, 2004 -
Brilliant minds linked
to autism - Historical figures including Socrates, Charles Darwin, and Andy
Warhol probably had a form of autism, says a leading specialist. - BBC
Comment:
Here we go again. Minimizing the very real pain and suffering of those
most acutely affected by autism by associating autism with its most benign (and
sometimes even beneficial) form. For more on this, go to
Scandals:
Adding Insult to Injustice to Injury Redux.
►January 5, 2004 -
Beth Clay Response to the WSJ ArticleThe Politics of Autism
- "As the former
Congressional Staffer who, for five years, led Chairman Burtons investigations
into the autism epidemic and vaccine safety concerns, I applaud the Wall
Street Journal for reporting on the rise in autism rates. There are,
however, numerous factual errors in the December 29 Commentary, 'The Politics of
Autism.'"
►January 5, 2004 - National
Journal Article Reveals Admission From CDC, Latest Vaccine Study Data Contained
Many Children Too Young To Be Diagnosed As Autistic - Official Accepts Critics' Charge, Parents Say Data Was
Manipulated To Cover Up Hidden Dangers Of Mercury Additive, Congressman Weldon
Asks Data Be Shared With Outside Researchers -
Safe Minds Press Release via PRNewswire -
"An article released by National Journal reveals disturbing new
information about a Vaccine Safety DataLink (VSD) study by the Centers for
Disease Control published in November's Pediatrics. A journalist for the
National Journal, Neil Munro, reports that Frank DeStefano, a CDC official and
co-author of the latest VSD study, admitted the study contained many children
too young to be diagnosed as autistic. The article quotes DeStefano as stating,
'This is true.'"
►January 4, 2004 - More
families have children with learning disorders - Alameda Times-Star Online
- "One in every three American families has had to cope with a
child with a learning disability or a mental illness and most people believe
such problems are increasing, according to a poll by Scripps Howard News Service
and Ohio University."
Comment: What's it
going to take for the "experts" to take seriously that vaccines may well be
involved in this devastating public health problem?
►January 5, 2004 - Appeal
to SAARC Summit in Islamabad on Autism - "Autism is on
the rise in India, Pakistan, Bangladesh, Sri Lanka, Nepal, Bhutan and the
Maldives - the countries within the SAARC region...There are 30,000 autistic
people in Sri Lanka, according to international experts there will be a massive
rise in 5 years time - in Sri Lanka and all over the SAARC region...Scientists
are still divided as to the causes of autism - parents are still asking the
question - is ithe MMR, is it genetic, is it caused by foetal distress at birth.
Asian parents need answers to these pressing questions on Autism."
Comments: As do we all, as do we all.
December 29, 2003 - January 4, 2004
►December
30, 2003 -
Story is laborious testament to mother's love (book review - The Boy Who
Loved Windows: Opening the Heart and Mind of a Child Threatened With Autism)
- The Boston Globe
►December
24, 2003 -
Autistic man wins court fight - icSouthLondon - "An
autistic man is set to receive substantial damages from Greenwich council after
it failed to give him the education he needed."
DISCLAIMER: All
information, data, and material contained, presented, or provided here is for
general information purposes only and is not to be construed as reflecting the
knowledge or opinions of the publisher, and is not to be construed or intended
as providing medical or legal advice. The decision whether or not to vaccinate
is an important and complex issue and should be made by you, and you alone, in
consultation with your health care provider.
"A foolish faith in authority is the worst enemy of truth."
-- Albert Einstein, letter to a friend, 1901
"I know of no safe depository of the ultimate powers of the society but the people themselves, and if we think them not enlightened enough to exercise control with a wholesome discretion, the remedy is not to take it from them, but to inform their discretion by education."
-- Thomas Jefferson, letter to William C. Jarvis, September 28, 1820
"What's the point of vaccination if it doesn't protect you from the unvaccinated?"
-- Sandy Gottstein
"Who gets to decide what the greater good is and how many will be sacrificed to it?"