Hot Topics - Diseases and vaccines - Autism

Hot Topics - Diseases and vaccines - Autism

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The Topics: *Alternatives *Big pharma *Big trouble *Conferences *Conflict of interest *Diseases and their vaccines *Legal/political *Miscellaneous *Research  *Vaccine-related issues

Diseases and vaccines - Autism        see also Autism/mercury    Autism/MMR    Autism therapies    Autism&vaccines

March 1-7, 2004

►March 4, 2004 - Autism? Dyslexia? Try Mozart - www.wnep.com

►March 5, 2004 - Men, Empathy, and Autism - A British researcher offers a new theory about the developmental disorder that has skyrocketed among children - http://chronicle.com

Comment:  For some insight into the furor that this theory has caused, go to Scandals: Adding Insult to Injustice to Injury Redux.

►March 6, 2004 - When autism causes aggressive behavior - www.king5.com

►March 6, 2004 - The Geek Theory of Autism - At university, William K. met for the first time people with exceptional skills like his own - National Post via www.canada.com

Treating the Biology of Autism: an approach to interventions for spectrum disorders (pdf) - conference alert - ASA/OCC Biology of Autism Treatments - April 3 & 4, 2004  in Pontiac, Michigan 

►October 2002 - What's in a face? - Novartis Foundation Bulletin

►March 3, 2004 - Autism complaints heading to tribunal - Rights commission forwards 121 cases Families call treatment discriminatory - The Toronto Star

►March 3, 2004 - Parents of Kentuckiana boy say he's part of rising incidence of autism - www.whas11.com - "Evan Riggle's autism is a puzzle – a puzzle his parents say is being pieced together by doctors, therapists, prayer warriors and family. His sister and brother help with his speech...'He hasn't even spoken a word, but he has the potential to change more lives than we ever could,' Evan’s father David says...Emlyn says Evan's system couldn't handle a mercury preservative in vaccines called thimerosal. She says once those vaccines had worn down Evan’s immune system, his one-year measles, mumps and rubella or MMR shot was a knockout punch."

►March 2, 2004 - UK autism research 'is lacking' - UK research into the causes and treatment of autism is seriously behind that of other countries, a report says.  - BBC News - "It says the row over a possible link with the MMR jab has over-shadowed the fact that little is known about the behavioural disorder...And it calls for wider research into all aspects of the condition."

March 1, 2004 - One of Largest Ever Genetic Studies of Autism Launched - Schafer Autism Report

New report calls for more research into causes of autism - National Autistic Society, UK - ""Mapping Autism Research" is the first-ever comprehensive overview of the UK research field. It outlines a surprising lack of research into the causes of autism and successful interventions compared with other countries. The review also concludes that research into how families cope and into autism support services is extremely scant."

►March 3, 2004 - Human Rights Tribunal of Ontario 121 autism related complaints - Medical News Today - "The Human Rights Tribunal of Ontario, Canada, is receiving a record 121 autism-related complaints by Ontario’s Human Rights Commission...The average number of complaints the commission refers to the Human Rights Tribunal of Ontario is around 90, and that includes all types of complaints, not just one type...The complaints say the province is cutting funding for the treatment of autism for children over six years of age. People say this is discriminatory."

"Recent Advances in the Biology of Autism" - Bassett Healthcare / National Autism Association Teaching Day - conference alert - May 1, 2004 at Clark Medical Education Auditorium in Cooperstown, NY

►March 1, 2004 - Autism Goes Public (requires registration) - The Washington Post - "Last year an employee of a Fairfax movie theater asked the Ortega family to leave a matinee of 'Finding Nemo.' The problem: Every time characters in the movie screamed, so did 4-year-old Nicholas Ortega...While some members of the audience found the cries objectionable, the child's behavior wasn't all that startling for his parents, Fidel and Gretchen Ortega. The Fairfax couple understood such outbursts to be fairly common for Nicholas, as they are for other children with autism."

►March 2, 2004 - Harrowing tale of one father's struggle against autism - Borneo Bulletin via www.brunei-online.com

►March 2, 2004 - Parents urge more autism research - Manchester Online

►February 23, 2004 - Termites, Crayfish and Autism - www.about.com

►March 1, 2004 - Autism research falls behind - The Western Mail via http://icwales.icnetwork.co.uk

►March 2, 2004 - 'I had to become an autism expert' - As experts call for more UK research into the causes and treatment of autism, BBC News Online talks to the mother of a nine-year-old autistic boy. - BBC - "Anna Parton, from Bromley, Kent, had to spend £12,000 and devise her own care plan to give her son Robert the help she felt he needed."

Comment:  It is a disgrace that so much of the cost of research and care falls so squarely on the shoulders of parents already over-burdened by the needs of their precious children.

Voyages In Autism:  Behaviors and Advocacy (pdf) - conference alert - March 20, 2004 in San Pablo, CA

►February 29, 2004 - One of largest ever genetic studies of autism launched - Arizona Republic via www.awares.org

►March 2004 - My life with Asperger’s syndrome - journal article (Archives of Disease in Childhood) 

►February 29, 2004 - Research slowly helping despair give way to hope (requires registration) - The Arizona Republic - "'Your child has autism.'...More than 10 families contact the Phoenix-based South- west Autism Research & Resource Center every week after hearing that devastating diagnosis...I say 'family' because autism not only affects your child, but every member of the family. How you feel, what you do, where you eat, how and where you sleep largely depend upon your child with autism."

February 23-29, 2004

►February 29, 2004 - Autism proves no barrier for these bright young sparks - The Straits Times

►February 19, 2004 - Lead Story: “Autism” - www.canada.com

►February 27, 2004 - Demand for research grows as autism cases soar - New York Times via Kalamazoo Gazette via www.mlive.com - "But what lies behind the increase in cases is sharply debated. To some, the upswing has all the hallmarks of an epidemic and indicates that autism itself is increasing rapidly...To others, the rise can in large part be explained by increased public awareness of autism in recent years, changes in the way the disorder is diagnosed and the incentive of tapping into federally mandated services for autistic children...Neither side can prove its argument, because the types of studies that could tease out a true increase have not been done."

►March 1, 2004 - Autism as early expression of catatonia - journal article (Medical Science Monitor) (abstract) 

►February 23, 2004 - Autistic Children Featured In Mind Institute Campaign - Mind Institute: We Want Scenarios To Be Authentic - www.thekcrachannel.com

►January/February 2004 - Autism: What's Sex Got to do With It - Psychology Today

►February 26, 2004 - Autism is 'positive' for Welsh painter - The Western Mail via http://icwales.icnetwork.co.uk

►February 25, 2004 - Dealing with autism: A sister's perspective - Children's PressLine via The Albuquerque Tribune

►February 24, 2004 - Lifting the Veils of Autism, One by One by One (requires registration or subscription) - The New York Times

►February 18, 2004 - Think twice about ‘disorderly’ children (opinion) - York Daily Record - "I am the parent of a preschool-age autistic child, as well as a 'typical' toddler. I’m writing in the hopes that some of the residents of the county might read this and think twice the next time they see an “undisciplined” child in the grocery store, the park, or the mall."

►February 24, 2004 -U.S. will pay for study to seek cause of autism - USA Today - "A major U.S.-financed study designed to unearth the roots of autism will track 100,000 babies in Norway to identify biological and environmental factors that could combine to cause autism and other developmental disorders...Researchers will collect information on exposures to toxins, including mercury, which has been suspected as a factor in autism, as well as diet, vaccines, babies' birth weight and head circumference, and volumes of other data that can be analyzed to compare children who develop autism with those who do not."

►February 23, 2004 - New group formed to aid adults who have autism - Knoxville News Sentinel via www.knoxnews.com

February 16-22, 2004

►February 4, 2004 - Amendment to immigration Bill 'could bar people with autism from entering Ireland' - Autism Cymru via www.awares.org

►February 18, 2004 - Autism claims attention at schools - Educators respond to increased cases among students - Atlanta Journal-Constitution - "Gwinnett County Public Schools has seen an unexplained explosion in the number of students like Danny, now an eighth-grader at Shiloh Middle School in Snellville...In the early 1990s, fewer than 50 students with autism were enrolled in county schools. This year, 689 are receiving services here — a more than tenfold increase in 10 years. Teachers are serving 150 more students with autism than they did last year, which makes these students one of the fastest-growing segments of the district's booming special education population."

►February 18, 2004 - Theories on autism - Capital News 9 - "This is what seems to be baffling the medical community. It is not clear if more children have autism, or doctors simply have a clearer understanding of what autism is."

►February 18, 2004 - Rise in autism due to change in diagnostic practice? - Pharmacotherapy via Medical News Today - "In the early 1990s, boys with diagnosed developmental disorders were infrequently diagnosed with autism. In the later 1990s, such boys more often were diagnosed with autism....CONCLUSION: A major cause of the recent large increase in the number of boys diagnosed with autism probably is due to changing diagnostic practices."

Comment:  Without seeing the raw data, it is difficult to know what this study is demonstrating.  But unless they can show that "developmental disorders" went down about the same amount as autism went up, this study does not prove that changing diagnostic practices are "a major cause" for the rise in diagnosed autism.

►February 16, 2004 - For the Love of a Child - www.the-signal.com - "Emily Iland said her son was not diagnosed with any condition until the age of 13.  She said they both cried every day for years because no one knew how to help him."

►February 16, 2004 - Autism: Looking for answers to a growing problem - Looking for answers to a growing problem - Scripps Howard News Service via Courier & Press - "It's one of the worst nightmares a parent can imagine - without warning, a child is abducted from his bed in the middle of the night, never to return...Now, imagine that instead of taking the whole child, only his mind is stolen and his body - the hollow shell of his being - is left behind."

►February 16, 2004 - Scientists theorize a new form of autism may be emerging - Scripps Howard News Service via Courier & Press - "
About half of all children with autism are mentally retarded, but many autistic children have normal or even superior intelligence. The share of autistic children who are not mentally retarded appears to be increasing, causing some scientists to theorize that a new form of the disorder is emerging...The societal costs are staggering. The average child with autism will require $4 million in lifetime supervision and care."

Autism Growth and Incidence Graphs - Fighting Autism

►February 14, 2004 - His world is worth knowing - Times Union - "Turns out he once had wanted to be a journalist, perhaps a sportswriter, but he couldn't do it...Because if he had to interact with people every day, something might be said that would cause his head to flail and his mouth to clamp onto his arm as he tried to regain control of himself...So Cohen, a 46-year-old Boston University graduate, can't work...He has Asperger syndrome, a form of autism that causes him to have difficulty socializing, to read more than an English Ph.D., and to experience occasional emotional outbursts, which occur infrequently now that he's older and on medication."

February 9-15, 2004

Increase in autism is due to changes in diagnosis, study claims - journal article (BMJ)

Comment:  For other perspectives on this, see what the M.I.N.D. Institute had to say about this, as well as F. Edward Yazbak, MD (at the Online Autism Conference at www.redflagsdaily.com).

Autism A.L.A.R.M. - CDC, AAP et al via www.medicalhomeinfo.org - "Autism is prevalent...1 out of 6 children are diagnosed with a developmental disorder and/or behavioral problem...1 in 166 children are diagnosed with an autism spectrum disorder"

Comment:  Note that it is the CDC and AAP that are saying this. 

January 29, 2004 - Coolidge v. Riegle - court of appeals decision re: autistic child who acted aggressively against his teacher

►February 12, 2004 - Making All Faces Familiar for Those With Autism - HealthDayNews via www.14wfie.com - "University of Washington researchers have discovered that the brains of people with autism function differently than the brains of normal people when they see pictures of unfamiliar people...The study of 11 adolescents and adults with autism and 10 age-matched controls also found that when people with autism see a picture of a familiar face, their brain activity is similar to that of other people...The researchers say these findings indicate that in people with autism, a brain region called the fusiform gyrus that's associated with face processing has the potential to function normally, but may need special training to do so."

►February 9, 2004 - Special Training May Help People with Autism Recognize Faces - press release - University of Washington via Newswise►February 9, 2004 - Coping With Autism - Ivanhoe Newswire - "The most recent statistics show autism affects between one and three of every 500 people. It’s a lifelong disorder that makes social interaction and every day communication tough. It also causes aggression in many people. Now different therapies can help ease that autistic aggression."

January 26 - February 8, 2004 (2 weeks combined due to illness)

►February 15, 2004 - Public health monitoring of developmental disabilities with a focus on the autism spectrum disorders. - journal article (Am J Med Genet) - "Developmental disabilities (DDs) are conditions characterized by physical, cognitive, psychological, sensory, adaptive, and/or communication impairments manifested during development. Approximately 17% of individuals in the United States 18 years and younger have a DD, and for most children the cause of their condition is unknown."

Comment:  Almost 20% of our children are thought to be developmentally disabled.  Isn't this kinda, sorta a crisis?

►February 6, 2004 - Coeliac Disease - the Tip of the Iceberg - University of Bristol via www.newswise.com  - "The full extent of a hidden condition which goes largely undetected among British children - and unnoticed until adulthood - has been identified by doctors in Bristol...Their research suggests that until now the scale of coeliac disease among UK children has been under-estimated. Currently, fewer than one in 2,500 children is treated for the disease, but the study of children in Bristol has shown that it probably affects one child in 100, although most have no overt symptoms."

December 28, 1994 - Autism and coeliac disease. - Collected Net Articles of Kalle Reichelt, M.D.

►February 3, 2004 - Disorder still largely a mystery - www.rockymountainnews.com - "They are children locked in a world of their own, victims of a mysterious brain disorder that steals their ability to relate to other people and their environment...And there are more of them all the time. The Autism Society of America reports that the incidence of autism is increasing 10 percent to 17 percent annually....'The numbers are really extraordinary,' Thomas Insel, director of the National Institute of Mental Health, told a conference on autism convened in November by federal health agencies."

February 6, 2004 - Fragile X/Autism Help - Ivanhoe - "Autism is a neurological disorder that affects about one in every 500 people. Another disorder, Fragile X syndrome, also called Martin-Bell syndrome, is less common, but has similar traits and can be just as difficult to live with. It affects females less severely, but for most males, social anxiety, behavior, learning and development are all impaired. Now one medication offers hope to these patients."

►January 26, 2004 - More and More Autism Cases, Yet Causes Are Much Debated (requires registration or subscription) - The New York Times - "Over the years, a host of other environmental factors have also been nominated as culprits, including a variety of infections, like German measles in pregnant mothers; the sedative drug thalidomide; the drug Pitocin, used to induce labor; synthetic compounds like plastics and PCB's; and food additives."

Comment:  Perhaps it is not just rubella (or German measles), but the rubella vaccine, which can cause autism.  For more on this go to Scandals: Is Rubella Vaccination Playing A Role In The Rise In Autism?

►January 26, 2004Autism Skyrockets In Quebec: A Secret No More - by RFD Columnist, F. Edward Yazbak, MD, FAAP in the Online Autism Conference at www.redflagsdaily.com

►January 26, 2004 - Coping with needs of two boys with autism - Toronto Star - "Lillian wanted to tell me a little about life with her beautiful boys, both of whom are autistic...She also wanted — very kindly and gently — to talk a little about the rest of us, about the judgments we make and the little things we do that can be very painful to parents of special needs children."

January 19-25, 2004

►January 22, 2004 - Scientific, Lay Press Starting to Label Autism "Epidemic" - Schafer Autism Report

►January 24, 2004 - Autism seems to be increasing worldwide, if not in London -  letter - F. Edward Yazbak, paediatrician - journal article (BMJ) - "Taylor's raw data have remained inaccessible since 1999, when he first denied any connection between autism and measles, mumps, and rubella vaccination, in a study that neither had a population based cohort design nor sufficient statistical power to detect an association."

►Winter 2003/published January 21, 2004 at http://jpands.org/ - Autism in the United States: a Perspective - by F. Edward Yazbak, MD, FAAP via Journal of American Physicians and Surgeons - "Once rare, autism has reached epidemic proportions in the United States.  The increase cannot be attributed to changes in diagnostic criteria, which have actually become more restrictive."

►January 21, 2004 - Autism reaching 'epidemic' levels - www.tcpalm.com - "It's one of the worst nightmares a parent can imagine - without warning, a child is abducted from his bed in the middle of the night, never to return...Now, imagine that instead of taking the whole child, only his mind is stolen and his body - the hollow shell of his being - is left behind."

►January 23, 2004 - Prevalence of serum antibodies to caudate nucleus in autistic children - the latest by Vijendra K. Singh - journal article (Neuroscience Letters) via www.sciencedirect.com

►January 20, 2004 - A World Apart From Autism - Asperger syndrome challenges experts to distinguish its symptoms and treatments - Newsday - "When Eric Schissel was a boy, ZIP codes fascinated him. And he had magnificent obsessions with mathematics, dictionaries, penguins and foreign languages. He was master of an amazing party trick: Pick any date in history, and he could tell you what day it landed on. But Eric Schissel wasn't invited to any parties."

►December 2003 - A review of research into pretend play in autism - journal article (Autism) 

January 12-18, 2004

►January 18, 2004 - Children with disability at risk of victimisation - Sunday Herald, UK - "Children who suffer from conditions such as autism or attention deficit hyperactivity disorder (ADHD) could be wrongly caught up in the criminal justice system as a result of the Scottish Executive’s Anti-social Behaviour Bill...According to the proposed law, anti-social behaviour is anything that is likely to result in the alarm or distress of a third party, but the campaigners warn that certain repetitive or unusual behaviour by children with autism or ADHD could be misinterpreted to mean exactly this."

January 18, 2004 - Autism rise may be a myth (requires subscription) - The Sunday Times, UK - "A leading medical team claims to have solved the mystery of Britain’s fourfold rise in cases of childhood autism — and it has nothing to do with the MMR ..."

►January 14, 2004 - Tall in the saddle - Disability is no barrier for determined young cowboy - Star-Telegram

►January 14, 2004 - Autism fears over disorder bill - A leading charity has claimed that a new law on anti-social behaviour could be used against autistic children - BBC

►January 12, 2004 - Science getting to roots of autism - USA Today - "High on the list of priorities is finding the genes associated with autism. At the meeting, the private autism research alliance and the public National Institutes of Health announced a partnership to do just that. The NIH is contributing $2.5 million, and the alliance is contributing $2 million to start the project, which will help to link the work of 170 researchers around the world, Shih says."

Comment from Professor Jon Kabara, BS, MS, PhD (link to references): "A seductive notion, but not to the point.  In research if you don't ask the right question you'll never get the right answer. If genetics were most important then why has autism gone from one in thousands to one in hundreds, maybe even one in less than a hundred?  I don't think that the gene pool has changed that drastically to account for this pandemic rise in diagnoses. If medicine/government would look in the mirror, it might find that over and inappropriate vaccine/drug use could be the main problem. Parents with autistic children have enough to deal with without the burden of genetic guilt."

►January 11, 2004 - Autism's full spectrum - USA Today - "When researchers study autism today, they are studying a more broadly defined spectrum of disorders than was once recognized...People with autism spectrum disorders can be severely impaired — mute, retarded, caught up in a world of obsessive and seemingly meaningless behaviors — or they can be so intelligent and verbal that they appear merely quirky to an untrained observer."

January 5-11, 2004

►January 7, 2004 - From the heart: Dad speaks out on autism - Raises awareness among medical personnel - Owings Mills Times

►November 2003 - Quirky Kids: Understanding and Helping Your Child Who Doesn't Fit In - When to Worry and When Not to Worry - book for sale via www.amazon.com

Comment:  Note the comments by "a reader from OH".

►January 11, 2004 - Life, love and autism: A tale of one couple's journey - Pioneer Press

Definitions of various PDDs (Pervasive Developmental Disorders) (scroll down the left side of the page) - PDD Parent Support

►January 11, 2004 - Some overworked parents get a break - An autism support group program offers care for special-needs children to give mom and dad some time off. - Times Leader

►January 10, 2004 - Yeats May Have Been Autistic, Psychiatrist Says - Reuters via http://entertainment.sympatico.ca - "Some of Ireland's finest minds including poet W.B. Yeats and founder of the Irish Republic Eamon de Valera may have been autistic, a leading psychiatrist said Friday."

Comment:  Here we go again.  Minimizing the very real pain and suffering of those most acutely affected by autism by associating autism with its most benign (and sometimes even beneficial) form.  For more on this, go to Scandals: Adding Insult to Injustice to Injury Redux.

►January 7, 2004 - National Summit Charts a Path Through a Scientific, Clinical Wilderness (require subscription) - journal article (JAMA) - "Autism advocates say that for decades, all of science has turned away from the mysterious brain disorder, diagnosed now more than ever. Jon Shestack, father of a son with autism and vice president of the advocacy group Cure Autism Now, said he felt like 'someone snuck into my home and stole my one-and-a-half year old's mind, leaving his bewildered body behind.' If 1 in 250 children were actually being abducted rather than diagnosed with autism, "it would be a national emergency," he said...Budget figures bear out such criticism.

►January 7, 2004 - If only he could call Dad - I have only one simple wish for 2004 - to hear my autistic son say 'Daddy' for the first time. It will be music to my ears - The Straits Times, Asia

►January 7, 2004 - Whitbread prize honours children's book - Reuters via www.abc.net.au - "Judges lavished praise on Haddon's winning novel, a murder mystery whose 15-year-old detective and narrator is a boy with Asperger's Syndrome, a form of autism."

►January 8, 2004 - Brilliant minds linked to autism - Historical figures including Socrates, Charles Darwin, and Andy Warhol probably had a form of autism, says a leading specialist. - BBC

Comment:  Here we go again.  Minimizing the very real pain and suffering of those most acutely affected by autism by associating autism with its most benign (and sometimes even beneficial) form.  For more on this, go to Scandals: Adding Insult to Injustice to Injury Redux.

January 5, 2004 - Beth Clay Response to the WSJ Article The Politics of Autism - "As the former Congressional Staffer who, for five years, led Chairman Burton’s investigations into the autism epidemic and vaccine safety concerns, I applaud the Wall Street Journal for reporting on the rise in autism rates.  There are, however, numerous factual errors in the December 29 Commentary, 'The Politics of Autism.'"

►January 5, 2004 - National Journal Article Reveals Admission From CDC, Latest Vaccine Study Data Contained Many Children Too Young To Be Diagnosed As Autistic - Official Accepts Critics' Charge, Parents Say Data Was Manipulated To Cover Up Hidden Dangers Of Mercury Additive, Congressman Weldon Asks Data Be Shared With Outside Researchers - Safe Minds Press Release via PRNewswire - "An article released by National Journal reveals disturbing new information about a Vaccine Safety DataLink (VSD) study by the Centers for Disease Control published in November's Pediatrics. A journalist for the National Journal, Neil Munro, reports that Frank DeStefano, a CDC official and co-author of the latest VSD study, admitted the study contained many children too young to be diagnosed as autistic. The article quotes DeStefano as stating, 'This is true.'"

►January 4, 2004 - More families have children with learning disorders - Alameda Times-Star Online - "One in every three American families has had to cope with a child with a learning disability or a mental illness and most people believe such problems are increasing, according to a poll by Scripps Howard News Service and Ohio University."

Comment:  What's it going to take for the "experts" to take seriously that vaccines may well be involved in this devastating public health problem? 

►January 5, 2004 - Appeal to SAARC Summit in Islamabad on Autism - "Autism is on the rise in India, Pakistan, Bangladesh, Sri Lanka, Nepal, Bhutan and the Maldives - the countries within the SAARC region...There are 30,000 autistic people in Sri Lanka, according to international experts there will be a massive rise in 5 years time - in Sri Lanka and all over the SAARC region...Scientists are still divided as to the causes of autism - parents are still asking the question - is ithe MMR, is it genetic, is it caused by foetal distress at birth. Asian parents need answers to these pressing questions on Autism."

Comments:  As do we all, as do we all.

December 29, 2003 - January 4, 2004

December 30, 2003 - Story is laborious testament to mother's love (book review - The Boy Who Loved Windows: Opening the Heart and Mind of a Child Threatened With Autism) - The Boston Globe

December 29, 2003 - Look more deeply into autism (letter) - The Times-Picayune

December 24, 2003 - Autistic man wins court fight - icSouthLondon - "An autistic man is set to receive substantial damages from Greenwich council after it failed to give him the education he needed."

Autism and Childhood Bipolar: A short history by Donna Williams - Autism Today

The 14 Signs of Autism - Autism Today

 

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